Last week we transferred $400 dollars that were raised during the UkieBoutique event. $302 (6,000 hryvnia) went to a very needy family in Zaporizzhia. Their daughter, Veronika who is 2 and a half has a very rare disease called "Cat Cry Syndrome" or "Cri-Du-Chat Syndrome".
What is cri-du-chat syndrome?
Cri-du-chat (cat's cry) syndrome, also known as 5p- (5p minus) syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing. Infants with this condition often have a high-pitched cry that sounds like that of a cat. The disorder is characterized by intellectual disability and delayed development, small head size (microcephaly), low birth weight, and weak muscle tone (hypotonia) in infancy. Affected individuals also have distinctive facial features, including widely set eyes (hypertelorism), low-set ears, a small jaw, and a rounded face. Some children with cri-du-chat syndrome are born with a heart defect.
The parents have utilized everything they have to help pay for treatment, medication. Doctors have given up on this child but with the perseverance from both parents, they keep defying the doctors and pushing their child forth. Veronika is an extremely compassionate child and very charismatic. She, despite all of the doctor's predictions have defied them and is sitting, crawling and standing with support.
Stream of Hopes would like to thank all who donated. Your money will be utilized for treatment of little Veronika. The rest of the money $98 will be utilized to purchase medication for kids with tuberculosis.
